Emil Kakkis
Founder at ULTRAGENYX PHARMACEUTICAL INC.
Net worth: 132 M $ as of 2024-03-30
Profile
Emil D. Kakkis founded Ultragenyx Pharmaceutical, Inc. and Everylife Foundation for Rare Diseases. Dr. Kakkis occupies the position of President, Chief Executive Officer & Director at Ultragenyx Pharmaceutical, Inc. Dr. Kakkis is also on the board of Emil Kakkis & Jenny Soriano Living Trust and Odylia Therapeutics and President of Everylife Foundation for Rare Diseases. In his past career Dr. Kakkis was Chief Medical Officer & Senior Vice President for BioMarin Pharmaceutical, Inc. and Assistant Professor at Harbor-UCLA Medical Center. Dr. Kakkis received an undergraduate degree from Pomona College and a doctorate from David Geffen School of Medicine.
Known holdings in public companies
| Company | Date | Number of shares | Valuation | Valuation date |
|---|---|---|---|---|
| 2024-02-29 | 2,827,898 ( 3.43% ) | 132 M $ | 2024-03-30 |
Emil Kakkis active positions
| Companies | Position | Start |
|---|---|---|
| ULTRAGENYX PHARMACEUTICAL INC. | Founder | 2010-04-21 |
| Emil Kakkis & Jenny Soriano Living Trust | Director/Board Member | - |
Everylife Foundation for Rare Diseases
 Everylife Foundation for Rare Diseases Miscellaneous Commercial ServicesCommercial Services EveryLife Foundation for Rare Diseases is a non-profit organization that aims to advance the development of treatment and diagnostic opportunities for rare disease patients through science-driven public policy. The non-profit company is based in Novato, CA and was founded by Emil D. Kakkis. The foundation provides training, education, resources, and opportunities to make patient voices heard, with the belief that activating the patient advocate can change public policy and save lives. | Founder | 2009-02-28 |
| Odylia Therapeutics | Director/Board Member | 2018-12-31 |
Former positions of Emil Kakkis
| Companies | Position | End |
|---|---|---|
| BIOMARIN PHARMACEUTICAL INC. | Chief Tech/Sci/R&D Officer | 2009-02-26 |
Harbor-UCLA Medical Center
 Harbor-UCLA Medical Center Medical/Nursing ServicesHealth Services Harbor-UCLA Medical Center provides medical practice, education, and research services. The private company is based in Torrance, CA. | Corporate Officer/Principal | 1997-12-31 |
Training of Emil Kakkis
| Pomona College | Undergraduate Degree |
| David Geffen School of Medicine | Doctorate Degree |
Experiences
Positions held
Connections
1st degree connections
1st degree companies
Male
Female
Members of the board
Executives
Linked companies
| Listed companies | 2 |
|---|---|
| BIOMARIN PHARMACEUTICAL INC. | Health Technology |
| ULTRAGENYX PHARMACEUTICAL INC. | Health Technology |
| Private companies | 4 |
|---|---|
Harbor-UCLA Medical Center
Harbor-UCLA Medical Center Medical/Nursing ServicesHealth Services Harbor-UCLA Medical Center provides medical practice, education, and research services. The private company is based in Torrance, CA. | Health Services |
| Emil Kakkis & Jenny Soriano Living Trust | |
Everylife Foundation for Rare Diseases
Everylife Foundation for Rare Diseases Miscellaneous Commercial ServicesCommercial Services EveryLife Foundation for Rare Diseases is a non-profit organization that aims to advance the development of treatment and diagnostic opportunities for rare disease patients through science-driven public policy. The non-profit company is based in Novato, CA and was founded by Emil D. Kakkis. The foundation provides training, education, resources, and opportunities to make patient voices heard, with the belief that activating the patient advocate can change public policy and save lives. | Commercial Services |
| Odylia Therapeutics |
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